Friends and Family

Forum Post: Re: dealing with teens

tlcgoodmom — Wed, 25 Jan 2012 19:10:00 GMT

I am so sorry you are going through this, however, I am so happy to hear you are as well. Makes me feel like I am not alone. I couldn't have wrote it better myself as to what I am going through with my 15 year old daughter. I am not sure what my job is. I do not want to nag her, but her decisions or lack there of, make me be the nag!! She has had T1D since April 2009, so we are going on 3 years. Then I look at it as in 3 years she will be on her own in college. She wants to go kind of far away from home which scares me to death. If she can't be responsible with it now, will she even be remotely ready in 3 years. I make the joke all the time that diabetes is aging me like a dog!! Hang in there, and happy to have someone to relate to.

Forum Post: Re: Having Diabetes

jennagrant — Thu, 12 Jan 2012 16:01:00 GMT

Hey Payton-

As you get older you'll realize that everyone has some issue they have to deal with. Might be health, weird personality, or a troubled family member. It is just a part of life.

Diabetes will bring challenges into your life, but it will also make you cooler in the long run. Having to deal with a difficult situation head on, figuring out creative ways to manage your blood sugar and fit diabetes into real life, and having to educate people about your disease will help make you into a well rounded person.

"Getting a Grip on Diabetes" by Spike and Bo Loy is pretty good. See if it's at your local library or if you can talk you mom and dad into buying it off Amazon. The diabetes info is pretty basic, but I think the authors found a way to deal with the frustrations and challenges of diabetes pretty well. One of them says having diabetes makes you smarter, more mature and better looking. =)

www.amazon.com/.../ref=sr_1_1

Forum Post: Research Study: Siblings of Individuals with Type 1 Diabetes--Please read!!

Julie E. Balzano, M.S.Ed. — Sun, 26 Jun 2011 16:44:00 GMT

My name is Julie E. Balzano and I am a fifth year doctoral student in the Counseling Psychology program at Fordham University. I am writing to ask for help in recruiting participants for my doctoral dissertation research examining the sibling relationship, empathy, and interpersonal problems among adult siblings of individuals with Type I diabetes.

I was wondering if individuals would be willing to help distribute an email about my study, post it to a blog you might have, or distribute my study flyer at any support group meetings or events you might have. And, of course, if you have sibling(s) and Type 1 it would be great if you could pass this information to your sibling(s). Study participants are the non-diagnosed adult siblings of individuals with Type 1, but the best way to get in touch with these individuals has been through their diabetic siblings.

Study participation occurs electronically, takes 20-25 minutes, and is anonymous. I have pasted study information below. Information can also be found at: http://siblingresearchstudy.blogspot.com/

Sincerely,

Julie E. Balzano, M.S.Ed.

***************************************************************************************************************************************************************

Participants must have sibling(s) who are EITHER medically healthy OR who have a diagnosis of Type I diabetes. Additional participation criteria include:

• Must be 18 years of age or older.

• Must have grown up in the same household with sibling(s).

• Participants may not have any serious medical conditions or developmental delays/ disabilities.

• Sibling(s) may not have any of the above conditions except for Type I diabetes.

• Sibling(s) must be alive.

Participation will take approximately 25-30 minutes of your time and includes electronic completion of one demographic information survey and three questionnaires. All participants will remain anonymous. To participate, type the following link into any web-browser and follow the directions:

https://www.surveymonkey.com/s/G3XW7KV

If you do not qualify, but happen to know someone who might be interested, I would really appreciate you passing this information along. Please feel free to contact myself or my dissertation mentor, Dr. Eric C. Chen, Ph.D., with any questions you many have. I thank you in advance for your cooperation.

Sincerely,

Julie E. Balzano, M.S.Ed.

Ph.D. Candidate

Counseling Psychology

973-818-0162

balzano@fordham.edu

Eric C. Chen, Ph.D.

Dissertation Mentor

Associate Professor of Counseling Psychology

212-636-6474

echen@fordham.edu

Forum Post: Re: Dating someone with T1

Ashley Kinstler — Fri, 10 Jun 2011 22:10:00 GMT

Also check out my blog about my life with type 1 diabetes. There may be some posts that could help you go about this.

www.iamjuvenated.blogspot.com

Forum Post: any advice for t1 son learning to drive

Mjk — Thu, 09 Jun 2011 01:47:00 GMT

my son just got his learner's permit to drive, but his blood sugars were so high that we couldn't hand him the keys! I'm so bumbed for him, and I'm wondering if any parents out there survived this period and how you did it...thx.

Forum Post: Re: Spouses

Laurel — Sat, 07 May 2011 11:43:00 GMT

Hi sarah. Don't know if you're still around on juvination but. I was just browsing and saw your comments... My husband is t1...22 yrs. He has only paid attention for the past 14 maybe. He is stage 4 we've had a couple scares .. High potassium can cause heart attack. His eyes... Some swelling and bleeders but so far so good. He insists hes doing everything right. I have my dots there :). But. Mostly he's scared. I think. The best thing we can do is pray and encourage I do my best to hold him accountable. And love him. Which is really hard sometimes :).

Forum Post: Re: Newly diagnosed daughter

rec1987 — Sat, 16 Apr 2011 06:35:00 GMT

Hi Ann, I too have a daughter who was dianosed at the age of 13 and she is 16 now. It has been a rollercoaster ride for us. She is doing well over all, but has hit that teenage stage and does not want to deal with it. she has scared us many times. But over all she is coping well. She plays several sports, and is involved with many out of school actvities. I find that it we can keep on a regular schedule with meals it helps keep her sugars in check. it is hard to do with all of her activiies, but I make sure she has some kind of snack with her at all times. It will never be easy, but we all can make it. with all of the support out there you will never be alone. Good luck.

Forum Post: I am T1 for 22 years. My little brother (he is 27 yrs old) was just diagonsed 3 days ago w/ type 1.

vicky1990 — Sun, 10 Apr 2011 01:11:00 GMT

Hello. My name is Vicky. I was diagnosed with type 1 22 years ago at age 11. I have two beautiful and healthy boys, ages: 5 (6 in June) and 17 months. I am also pregnant with our 3rd child. Due in September. I am on this blog because my baby brother was just diagnosed 3 days ago, also with type 1. I am shocked becuase I have 5 brothers and no one in my family, i.e. uncles, cousines, grand parents, parents, etc.... even has type 2, and now both my brother and I have type 1. I totally thought that my diabetes was a fluke and it wasn't hereditary and now I have to realize that it actually runs in my family, potentially affecting my little babies. Had I known this I may have not decided to have children of my own. Prehaps decided to adopt instead. Of course everything happens for a reason, hence the fact my lil bro was diagnosed 4.5 months into my last pregnancy, however I am terrified of this darn disease for him.

I have been very blessed for almost 23 years to have stayed as healthy as I continue to be. My two earlier pregnancies were great and I have no signs of complications from diabetes, albeit it has been a difficult journey dealing with this disease. Nonetheless, I have accepted and feel strong enough to deal with the disease myself. I just worry about it affecting others close to me. It feels like the walls are closing in. I know I am being dramatic, but I am MAD that it is 'spreading' amongst my loved ones. Ironically, just last week (prior to ever knowing or even thinking my brother would siffer from diabetes) my 5 year old asked me if diabetes was contagious and I told him no! He had nothing to worry about.

I just wanted to share my story and give hope and strength to those young girls/women hoping to live a normal future relative to good health and strong healthy pregnancies. It is more than possible, so long as you take care of yourself and accept the extra care your body needs.

Good luck to you all and best wishes!

Forum Post: MY BLOG CONCERNING TYPE 1 :)

Ashley Kinstler — Sat, 12 Mar 2011 13:48:00 GMT

www.iamjuvenated.blogspot.com

check it out :) make a blogger account and "follow" me, leave comments, and take the polls that change often at the bottom of my homepage!

have you friends and family read to learn about it!

Forum Post: Re: Diabetes and Dyslexia

JDVsMom — Wed, 09 Feb 2011 18:49:00 GMT

My son is only 5 and he is not LD (that we know of) so, I will give some suggestions for managing a younger child who can't carb count yet.

Carb counting can be difficult, but with practice it becomes a lot easier. Many foods are similar. See if you can work with a dietician or nutritionist that can help. We were taught some pretty basic rules of thumb that help in guesstimating. Part of what will help him might be just learning a certain lunch (a sandwich, an apple, a bag of chips, some carrots) are X carbs so he gets ___ units of insulin for it. Then he could eat that same lunch every day. For my son, he has lunch at school so I carb count his hot lunch every week and then the lunch ladies measure out what I say to give him and a teacher keeps track of what he eats. Might be something to consider with the school until your son is more comfortable.

My son's insulin pump also has a list of food choices and carb amounts loaded in it. I rarely use it, but it does come in handy and it might be easier for your son. (Of course, it would be very fast to put him on a pump, but some endo's will do it as fast as you want (our clinic did). With his pump, we just enter in the carb total and the pump does the rest of the math using settings I've loaded in (with his endo). It makes it much more fool proof.

Some things that help us when we are traveling is that I measure out amounts into a sandwich bag and then write on the bag the amount. Or using 3x5 cards to write down the foods and give a total so that he knows what to eat.

I'm sorry your training has been less than what you expected. I am so thankful that ours was very in depth and the trainers were willing to spend as much time as we needed to learn how. It is a LOT to learn. So keep looking until you find a care team that will work for you - they are out there.

Forum Post: Re: Daughter of 12yrs old

jesicaRN — Fri, 12 Nov 2010 20:37:00 GMT

I have a 10 year old daughter, she was just recently diagnosed almost 2 months ago. It shocked us all, but answered so many questions. We take it one day at a time and our coping method seems to be advocacy, education and empowerment. I hope you are both doing well. Hope you find the support you need.

Forum Post: Re: low blood sugar unawareness

orange_mms — Thu, 11 Nov 2010 06:28:00 GMT

[quote user="Scottie"]

I don't know how conversation works on this site.-----

[/quote]

Hello ! Just thought I could help with the starting a conversation topic. Add the person you wish to have a conversation with as a friend. Open your friends list on your home page (upper right corner) and click the start conversation button under picture. Then type your message and send. They will hit reply, type their message and send it back to you. I hope this helped.

Forum Post: Memories

Nads — Wed, 03 Nov 2010 21:15:00 GMT

I'm not sure why this thought crossed my mind today, but....

I was diagnosed in 1973, before pumps and bg meters. Diabetes was a pretty "secret" thing to deal with, really.

So recently, I was going through some photographs of my childhood and realized that I really have none, not one, that somehow attests to the fact that I have been living with this disease for 37 years! The funny thing is that I am somewhat disappointed by this! I guess since I've come to terms with it, almost embraced it, I feel that I should have some kind of "badge of honour" for all those years that I fought to stay alive!

Again, this began with sorting through old pictures. I am the youngest of four children, so as usual, there aren't many pics of me - no time! lol But there are no pics of me injecting, testing my urine, passed out from low BG... nada! The only one is a picture of me on the beach of the cottage we were visiting the weekend I ended up being taken to hospital and later diagnosed; I certainly was a lot lighter in weight than I had been previously!

So, my question probably goes out more to those diagnosed, say, 25+ years ago: What sort of tangible memories do you have? (Just curious!)

Forum Post: Re: "free" (under 5 carbs) snacks

GB Bongiovanni — Mon, 01 Nov 2010 20:19:00 GMT

I can't remember the name but there was a low carb yogurt that was only 3 total grams of carbs that my daughter liked for awhile.. Also bacon, sausage, and meats do not have many carbs in them.

Forum Post: Lazy Days of Summer

ClaudetteSanDiego — Sun, 15 Aug 2010 21:45:00 GMT

Although you can't take a break from type 1 diabetes you can still enjoy simpler times and simpler days. You can still enjoy the lazy days of summer. What does a lazy summer day look like to you ? What kind of things would you do on a lazy summer day ?

Read one woman's idea of a lazy summer day. Click on the link below to her post. Check out other posts on this site - the San Diego Chapter community. Read some of the other posts and post your comments. Why not start a discussion ? We are always looking for new members.

http://juvenation.org/groups/jdrf_san_diego_chapter/forum/t/7821.aspx

Thanks

Claudette

Forum Post: Re: loss of a loved one

Shannon Edwards — Thu, 18 Mar 2010 00:07:00 GMT

I am sorry fr your loss my heart goes out o you! I have not loss anyone to diabetes to be completely honest with you I did not know about diabetes or anyone with it until 10 months ago! On May 5, 2009 my eight year old son TyShaun was diagnoised with type 1 Diabetes and my world came crashing down. It is hard and we struggle with it everyday. Remember your Grandma for all the fun and happy memories you have with her and all that are shared with you keep her alive in your heart and know that she is always there looking after you loveing you and missing you as well! If you ever want to talk or write and just have someone listen you cn contact me I am always here to listen I know that sometimes you just need someone to talk to especially someone who is not around you all the time! God Bless you and your family you will forever be in my thoughts and prayers!!

~Shannon Edwards

Forum Post: Re: An ear to listen, a shoulder to cry

meme — Mon, 11 Jan 2010 00:51:00 GMT

Hi AlexisMom, Please know you are not alone.....There are parents here that have a child your daughters age.Some new to d like your daughter.You have found a good place full of good people who understand how you feel.Take Care...

Forum Post: Re: Any grandparents or great grandparents out there?

IRENE O — Wed, 25 Nov 2009 15:17:00 GMT

I am a proud grandmother to the sweetest granddaughter ever and who was diagnosed at the age of three. GM & GM marvel at the progress she has made since her diagnosis. She has the best parents and big sister who care for her with such love and devotion.

Forum Post: Re: Sensitivity of Others

Kristen Farmer — Tue, 17 Nov 2009 19:22:00 GMT

I find no one understands either. Everyone gets on me for being so depressed about it and just tell me at least he is alive. Yes I am very lucky he is alive but it doesn't make it easier. It is coming up on 1 year in Jan. We have been in and out of the hospital all year. I am over it as I am sure everyone with this dsease is. I want my healthy 2 year old back. He is almost three and he is already telling me hates having Diabetes. He gets it. He looks at certain foods and says "me don't have it me have diabetes." Caden has past out from lows and seizures from the lows. He is so hard to get under control I feel we are never going to get him there. So I will never feel guilty about being depressed for my son as you should not feel guilty.

Forum Post: Re: My son is my hero

Kathie — Fri, 13 Nov 2009 20:11:00 GMT

Tiffany,

What an inspirational boy! I want to welcome you to the site and I can't wait to hear more about his story. My daughter is 6 now but was diagnosed at the age of 4. I have 3 other children, one of which has epilepsy. Auto-immune disorders run in our family although I had not heard that term before until my daughter was diagnosed. This site has helped me realize I am not alone and I am glad to meet new people who know where I am coming from. Your son sounds like a delightful boy and you sound like a very good mom. Welcome aboard!!

Kathie