For the past few weeks we've been asking you "What do you want to talk about?" for our World Diabetes Day Type 1 Talk program.
Well, we were overwhelmed by the number of people who took the time to share their ideas and/or vote on potential topics for our UStream broadcast. Google Moderator voting wrapped up on 10/22, and in the end, 240 people submitted 122 agenda topics and voted 3,528 times on those topics! Thank you to everyone who took the time to share their thoughts with us!
As promised, we will be incorporating as many of these suggestions into our agenda as we can. Unfortunately with over 120 topics submitted, there's no way that we can cover all of them during the hour-long presentation. We hope to address them via our social medial channels moving forward after November 14.
So, with that, here are the top 5 vote-getters that we'll be covering during our UStream broadcast from 3-4pm EDT on Sunday, 11/14. We will also devote part of our conversation about how JDRF can more effectively partner with the DOC (diabetes online community) to provide daily support. If we have time to cover more, we definitely will!
And the top 5 topics are...
Now that we've shared our live broadcast topics with you, I bet you are wondering who will be presenting on these topics, right? Well, you'll have to stay tuned for our announcement next week! In the meantime, leave us a note below on which of the topics you are most excited to hear about.
P.S. For those of you who want to test out UStream before the big day on 11/14, join me on our UStream channel (http://www.ustream.tv/channel/jdrf-advocacy) for a Q&A session about Type 1 Talk events/logistics during the following times:
Thursday, November 4 at 7pm EDTSunday, November 7 at 3pm EDT
The AP and research topics don't interest me. Honestly, I can get that information from reading the reports online from the JDRF. I'm most interested in seeing the JDRF step outside itself and hit on a topic larger for the diabetes community, such as increasing public awareness overall about Type 1 (versus the T2 "epidemic" so prevalent) and health care coverage for Adult Type 1s.
I'm looking forward to the AP, Treatments, and Awareness/Education topics. I really learned a lot from the webcast Dr. Kowalski did a few months ago about the AP, so I'm excited to hear some follow-up to what I learned there.
I am really glad we are talking Health Care coverage issues. This is a major issue for most Type I diabetics. I am 48 years old and may be losing my job and thus coverage is critical
Can't wait to hear about "treatments existing and in the works" and also what's new regarding the artifial pancreas.
This is an excellent range of topics, I am especially interested in progress made in autoimmunity issues: preventing the autoimmune attack in the first place that would stop the development of the disease. And for those who already have the disease, stopping the autoimmune attack on transplanted beta cells is imperative.
As the parent of identical twins, one with T1, and the other at high risk for developing it, these issues remain of paramount interest to me.
I am looking forward to the insurance topic very much as well as the increasing public awareness issue. There is a lot of misinformation out there and I'm sure many of us educate people on a regular basis. My son (T1) and I just today were at an elementary school listening to a presentation that a group of kids is doing as a part of a competition. They are doing a fundraiser for JDRF (yea!) and their presentation was about diabetes so they wanted an "expert" to critique it. It was great and they had many good questions. How to do that on a larger scale would be intersting to discuss.
I would agree with Michael on the AP and research topics, although I would be interested in hearing how a closed loop system will account for variations in bg that are attributable to emotion, exercise, etc. As we are hosting a type 1 talk event, I am most excited about this opportunity for JDRF to reach deeper into the community and remind us of it's grassroots beginnings.
Well, I'd be very cautious about the Public Awareness issue..That is Cluing the public alot more information about our T1..
Reason being? The Most they know, the more they will Discriminate against us..Ever since the PC/Internet and all the ease of Availability of Information ..more and more With T1 are being Discriminated against ..either Directly or Indirectly..More and More Laws are going on the Books to " protect" the Public with Driving Laws and When you Tell a Prospective Employer you have T1? They always find indirect ways Not to hire you..
and those of you who want to get married? You can't just explain what you have in a few words or less anymore..
Here in Chicago, Ron Santo a Retired Baseball Player and Radio Commentator for the Chicago Cubs, has raised awareness and Funding for JDRF, but His Degenerating Health is showing the public what happens to those who get T1..Double edge Sword if you will.
The live presentation needs to be informational, newsworthy and exciting -- so we can capture and keep people's attention! I am currently participating in an APP trial but I agree with Michael -- there's a lot of good information already available. I'd like JDRF to focus on insurance issues, autoimmunity advances awareness/ education and -- how we can develop deeper support within our local communities using traditional and online tactics.
Continuious Glucous Monitors! CGM's
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I am 44 years old, and have low blood sugar unawareness. I despreatly need a CGM, and insurance will not cover it! I no longer feel any low, and can get as low as 30, or 20 and nothing low blood sugar unawareness. Other day, i checked my sugar fro my insulin pump, did a two hr post and was 21! I did not get loopy, slaop happy, or silly, agetated or anything... as use to to at least others new was low, and was acting weird... My machine was calibrated fro checked that after. I also has gasteroperisis so once is low and that low, I have a hard time getting it back up was a total nightmare, and scarey. For if my two hr post did not vibrate me, I no longer would be here. CGM's are needed to be covered by insurance compaines and why are they not covered, I can die, with out one. My child is Type 1 diabetic and she needs me, to help take care of her also on insulin pump! Lisa
I hope to see AP is going to work for long run it's very important issue.for now we need to work on health care coverage.we need it now!!
Healthcare is definitely a major topic because without it most all of us Type I diabetics cannot afford any of these complex treatments. They are all costly, from test strips to transplants to the artificial pancreas.
I'm most excited about "Increasing Public Awareness & Improving Education About Type 1 Diabetes. Awareness & Education is so important to EVERYONE!
These are all great topics. So my question is do we want to go deep on less or be very superficial on all of them. Hosting an event here and I suspect our attendees would prefer to go deeper on a few less. I'm not sure we can adequately cover 5 topics this important in one hour. Would love to hear what others have to say.
Thanks for all of the comments about our agenda! As I mentioned, we couldn't cover all of the topics people submitted on Google Moderator, but I think that with the way the voting worked out, we ended up with a good mix of topics to discuss. And we will do what we can to address the rest throughout the year!
@Jackie: If you are planning on watching our live UStream broadcast, then you can just watch the presentation and submit questions to us throughout the broadcast via UStream, Facebook, Twitter or text mesage. If you are not planning on watching the broadcast, then you can discuss any topics that your guests would like to talk about!