Every year the JDRF Advocacy team conducts a survey of our T1D advocate network and this year’s survey is right around the corner, coming this Thursday, February 16!
Since the beginning of October 2011, the JDRF T1D advocate network has grown by nearly 35%! This is due to the great work you all did in helping us spread the word about the Artificial Pancreas petition.
With so many new advocates, we’re going to need to know where you guys want the JDRF Advocacy program to go. When you receive the survey, please take a few moments to fill it out… it shouldn’t take more than 10 minutes.
We’ll also be conducting the survey via social media, so be sure to find us on Facebook, Google+, or Twitter. Or you can receive the survey via mobile, simply text ‘ACTION’ to 37420.
Hasan
what can we do to help. my daughter died of diabetes i would like to do what i can
While the artificial would be a great innovation for controlling blood sugar, God only knows when or if it will ever become available for diabetics. My question is this: Why do you only put all your efforts on something that nobody knows if it will ever be developed, ignoring use of the CGM which despite Medicare, works!
I have had Type 1 for 52 years and both of my sons are type 1's too Boy, do I have a story or two to tell
I am hoping artificial pancreas will soon be able to help people who have pancreatic cancer as well
Either in the UK or Ireland
thank you for all the work you do. Will be looking for the survey.
To everone on here God Bless you.To the lady who wanted someone her daughter could talk to because she is the only one in her school with diabetes,PLEASE email me my daughter is the same way.rosefrazier13@yahoo.com
Thanks for all the hard work and for being there. I will be looking for the survey.
My daughter was diagnosed 16 years ago when she was almost 3 years old. We cried when the Edmonton trials were successful and then heard no more...Last night I saw the news that adult stem cells were coaxed into forming heart muscle for heart disease victims...The artificial pancreas is admirable but am I the only one who is discerning a seeming resistance to an actual cure? I am maybe sounding suspicious and cynical, but maybe this disease just makes too much money for too many companies :(
Great info and update! Thanks for keeping everyone in the loop.
Hi, I just wanted to thank you for all you guys are doing to help kids like with me with type 1 diabetes. WE REALLY APPRECIATE IT!!!!!!:) Thank you SSSSSSSSSSSSSSSOOOOOOOOOOOOOOO much!!! I will be looking for the survey
Janet, I pray that's not true! Unfortunately, I've had the same sad thought about companies making too much money off our children's life threatning disease. In fact I thought that today as I had to pick up a box of 50 strips for my 10 year old. $77.00 to Walgreens for 50 strips. Yes, we get a three month supply of strips covered by insurance, but it's never enough to cover three months for a very active 10 year old boy. Especially when we try to keep really good control, which our children need. I'm praying for Dr. Faustman and her researchers, hoping that she really is on the cusp of the cure.
I am at a loss for words when it comes to diabetes. Please continue your work in advocating for better treatment and a cure! I'll look forward to the survey and anything else I you suggest I do!
I have had diabetes for 62 years and since the beginning there have veen many improvements but I just wish that more could be done. The artificial pancreas would be able to help a lot of people. Lets hope that the petition will go through.
The artificial pancreas would be wonderful if it works and when ever that would be. Until then Animas needs to improve the quality of their pumps. Have had buttons stick, a screen go blank and had to rush out to West Chester, Pa to get another because could not wait two days for another to be shipped because UPS dose not ship on the weekends. Lucky I live only 1 hour away from the headquarters. There has been no improvement in infusion sets for the past 10 years which is how long since my son has been diagnosed with Type I. Companies need to stop blaming patients when for the most part it is the products. Patients get blamed for poor control when the reality is they are given imperfect tools to work with. Money is pouring into research and nothing seems to come of it, then companies use inferior materials and say it is patient error.