Hi Everyone,
I just joined this website this week and it is pretty cool! I'm 20 yrs old and from Toronto,ON.I was diagnosed with Type 1 at the age of 11 and then diagnosed with Addison's in 2006.
I was wondering if anyone else has Type 1 and Addison's disease? I know Addison's only affects like 1 in 100,000 or something like that, but it would be nice to talk to someone else dealing with the same things i'm dealing with.
Diagnosed with Type 1 at age 11
Hi Leanne.
My son was diagnosed in 2007 with diabetes. His cortisol levels have been borderline a couple of times. His endo called it "adrenal insufficiency" but he hasn't been diagnosed with it. I learned that it is actually called Addison's Disease when I learned that my cousin has 2 daughters with it. It makes me very nervous that my son may end up with yet ANOTHER autoimmune disease. (This would be three.) :(
Hi trish,
It seems like not many people know what Addison's is so I usually just say "adrenal insufficiency", thats what is on my medic alert as well. I'm sorry to hear about your son. I take hydrocortisone and fluronef for my addison's and since I have to take hydrocortisone (a steroid) it makes me a little insulin resistant so my insulin rates are higher than they would be without addison's.
It bothered me a little when I cried and the doc said, "He would just have to start taking a pill everyday." JUST.
Anyway Leeann, I hope you do well with all that has been handed to you. Thanks for the extra info. My son is pretty sensitive to insulin (he's only 4) and so a little resistance probably wouldn't be so bad, but I don't wish it on him.
JUST take a pill everyday? ha! It's not as easy that sometimes. I have to take a couple pills a day, and depending on my physical activity, and how stressed I am I have to up my dosage. Also just like with diabetes, sick days with addison's requires adjusted doses.
Thanks for sharing with me!