Contact Community Manager Gina Capone with questions/concerns about Juvenation content and/or user behavior. Please include specific usernames, quotes, and links wherever possible.
Contact Technical Support if you're having a technical issue with the site. Please include specific usernames, group names, and links whenever possible.
Click Edit Profile on the top right of your profile screen. In your profile options you can add or change your avatar, create your bio, edit your profile information for; location, Birthday, email & contact info.
You can also click Settings on the top of the screen to add a signature and customize what you share and what emails you receive. You will also find Sign-in Information and your Sign-in name and your Password.
Don't forget to press Save when your done.
You can add a person as a friend by clicking Add as Friend on the top right of their profile page. You can click to users profile page from any discussion your interested in, or you can use the advanced search to search for People.
Please note that the requested friend can accept or deny your request.
If you are interested in keeping track of what another member of the community is doing but are either waiting for a response to a friend request or don't want to request friendship, you can instead just Follow him/her.
When you follow a user, the user's activity displays under the Friends & Groups tab on the Activity widget and no other widgets.(As a contrast, the Activity widget's My Discussions tab applies only to forum discussions and has no relation to followed users.) The followed user will also receive an email notification that you are now following them.
If the person you're following is also interested in tracking your activity, he/she can either add you as a friend (to acknowledge the connection to the community) or follow you as well.
You can still have a user as a friend but not follow him/her by clicking Stop Following. This may be useful if you wish to remain connected to the person, but have found them too noisy to follow. You might also wish to remove him/her as a friend. Note: Users do not have the ability to stop other users from following them, and in a sense it's not necessary to have this ability. The user who follows you only has permission to view public actions - as with Twitter.
You can add a comment on status from their profile, in the activity section of there profile. Simply click reply and you can leave message.
You can send a private conversation message by clicking on start a conversation on the users profile OR from your profile in your Friends tab.
To see who is online you can can click the Who is online in your dashboard links.
We have removed the Invite a User form because no one was using it. If you would like to invite users please send them a link to Juvenation.org, and ask them to Friend you on Juvenation.
Now everyone can upload a video to Community videos. Make sure it’s appropriate, and tag the video with words that define the video content.
To upload videos you must go to the Community Video section and click New Post. You will see a button called Specify URL, and then paste a YouTube video in.
To paste from YouTube first find the video you want to use on YouTube and then copy and paste the URL from the browser location window.
Please Note: Files will not show up immediately because a Juvenation moderator will need to accept the posting before it goes on the site.
Each member gets a blog to write multiple posts, you also have many features for managing your blog. To manage your blog, go to your dashboard and click a link called Manage My Blog you will see a screen with your active blogs.
To manage a blog click the link in the Blog Title column (the link in the Blog Address column takes you to the blog itself). When managing your blog you will see three links:
Write a blog post Write a new post to your blog
Recent Comments Review comments people have posted
Blog Setup Configure common blog settings
Juvenation is moderated by JDRF staff and volunteers. Inappropriate, suspicious, and/or offensive content and behavior is scrutinized wherever possible, however, not every post or thread may be noticed by a moderator. We encourage our users to use the “report abuse” feature to help keep Juvenation safe.
In addition, we recommend that concerned parents or teens review the FBI publication: A Parent’s Guide to Internet Safety for additional information and FAQs.
To create a new forum post click on the forum link. There will be a link to the left of Shortcuts that says Write a new post click the link. It will then create a drop down menu, choose the forum you would like to add your new post to and a new page will come up that says post a message where you can add the subject and body. You will also be able to add a file attachment by clicking on options, video, a poll and preview your post before it goes live. Then click on post to the bottom left of the page.
If you would like to quick reply to a forum at the bottom of the last post in a forum there will be a button that says quick reply, press that and a Reply to box will pop up where you will be able to respond. Press the post button and your response will come up in the thread.
On every post replied there is a more button next to reply at the top part of any post. Click on the button, a drop down will appear and click on the link that says Send to friend.
There is a moderate button at the bottom of every post in the forums. You will be able to delete or edit your post by clicking that option.
On every post replied there is a more button next to reply at the top part of any post. Click on the button, a drop down will appear and click on the link that says Add to Favorites. You can also add this forum to favorites as well.
On every post replied there is a more button next to reply at the top part of any post. Click on the button, a drop down will appear and click on the link that says Report Abuse.
When you click on the Forum Link. There is a shortcut link with 7 links. Click on the link that says Posts you have not read.
When you click on the Forum Link. There is a shortcut link with 7 links. Click on the link that says Forum Subscriptions. Here you can choose to subscribe or unsubscribe to any threads.
When you click on the Forum Link There will be 5 links right under the Forums descriptions called;
Filter: All Recent | Unanswered | Unread | Your Discussions
You can click on any of these links to find threads and forum posts you are interested in.
You can join a group by clicking on the Group tab at the top of any page.
Choose the group you are interested in by clicking the Group tab. Once you click on a group there will be a short cut list on the right hand side of the page, click on discussions and a new page will pop up where you can then click on Write a new post.
Choose the group you are interested in by clicking the Group tab. Once you click on a group there will be a short cut list on the right hand side of the page, click on sorting and filtering and a new page will pop up where you can then edit your sorting and filtering options.
Choose the group you are interested in by clicking the Group tab Once you click on a group there will be a short cut list on the right hand side of the page, click on Blog and a new page will pop up where you can then create a new blog.
Only Juvenation moderators and administrators can create pages at this time.
Choose the group you are interested in by clicking the Group tab Once you click on a group there will be a short cut list on the right hand side of the page, click on members and a new page will pop up where you can then view all members assigned to the group.
Choose the group you are interested in by clicking the Group tab Once you click on a group there will be a short cut list on the right hand side of the page, click on RSS and a new page will pop up where you can then create a new RSS feed.
Click on the group tab Scroll down till you see the short cut list on the right hand side of the page, click on request new group and a new page will pop up where you can then request a new group.
The JDRF website provides fact sheets on each of these topics. JDRF also produces regular research updates to help keep you informed on the latest progress in type 1 diabetes (T1D) research. To stay informed on the latest news, please visit JDRF’s website and subscribe to our free online publication Countdown; review the Research pages on JDRF.org; visit our newsroom and check out JDRF’s News Blog. All of these resources are updated with new stories frequently.
The symptoms may occur suddenly, and include one or more of the following:
If you think you or your child has type 1 diabetes (T1D), call a doctor immediately, and drink fluids WITHOUT SUGAR, if able to swallow, to prevent dehydration.
For more details about T1D, please visit www.jdrf.org.
In a person who has type 1 diabetes (T1D), the insulin-producing beta cells in the pancreas are destroyed by immune cells. However, right after the time of diagnosis, some patients go through a "honeymoon phase" in which their existing beta cells still function. Halting the autoimmune response in people with new onset T1D and those who are at risk is one of the chief areas of research JDRF is focused on. JDRF funds a number of efforts to curb the progression of T1D in the newly diagnosed. A number of research projects funded by JDRF have shown promise in preserving the function of these existing beta cells in people with T1D past the honeymoon phase. To learn more about recent successes in this area please visit the JDRF website.
Researchers are still trying to get a clear picture about how genes and environmental factors interact to determine a person's risk of developing type 1 diabetes (T1D). Forty percent of everyone in the United States carries one or more of the HLA genes (human leukocyte antigen) which lead to increased risk of T1D. To be at increased risk, however, an individual needs two copies of these genes, one from each parent.
One in 400-500 people in the general population developsT1D, but 1 in 20 (5 percent) people are at risk if a parent, sibling, or child has the disease. Research has shown, however, that genes don't tell the whole story, and suggests that environmental factors (which are not yet fully known) play a role as well.
JDRF is currently funding a study that will follow more than 7,000 newborns at increased genetic risk of developing T1D and will collect vast amounts of data on potential environmental factors over a 15-year period to see which ones are associated with a greater or lesser risk of developing the disease.
Research has shown that at most, only 15 percent of people with type 1 diabetes (T1D) have an affected first-degree relative – a sibling, parent, or offspring. Based on research, we also know that genes account for less than half the risk of developing T1D. These findings suggest that there are other factors besides genes that influence the development of T1D. We don’t know what these factors are, but a number of different theories exist.
In general, there is a misconception that T1D is a familial disease and primarily occurs in families where there is someone else with T1D. In reality, only about 10% of individuals who are diagnosed withT1D have a family history of the disease.
For detailed information, you can read about the current research into the genetics of T1D on the JDRF website.
You should check with your doctor to determine the range of blood sugar levels best for you. In general, optimal blood sugar goals are: Before Meals: 70-110 mg/dl At Bedtime: 100-140 mg/dl If your before-meals blood sugar is consistently lower than 70 mg/dl or higher than 140 mg/dl, or your bedtime blood sugar is consistently lower than 100 mg/dl or higher than 160 mg/dl, you probably need a change in your treatment plan and should consult your doctor. Blood sugar goals may be modified for children and others who are at greater risk for hypoglycemia.
Yes. JDRF has many compassionate, understanding, and dedicated volunteers who have been through many of the things you are experiencing and are more than happy to help you. Our Online Diabetes Support Team is made up of such volunteers. In addition, your local JDRF chapter can tell you about support groups in your local community that meet on a regular basis. For information on specific topics and latest products and technology, see our Resources page.
School presents a host of challenging issues for children with type 1 diabetes (T1D), and it's important to know how to work with the school to ensure the best care for your child. JDRF's School Advisory Toolkit is a comprehensive resource for parents, teachers, nurses, and everyone who provides care for a child with T1D in school. It was written and compiled by JDRF volunteers with a direct T1D connection, and reflects their personal experiences. Additionally, information on laws protecting your child, as well as a back-to-school webcast and many articles with practical tips and advice from other parents is available on our Type 1 Diabetes in School page.
JDRF appreciates the need for resources and support among members of the adult type 1 community. JDRF is active in research that benefits people with type 1 diabetes (T1D) at all ages and all stages of the disease, with special programs geared to both children and adults.
The JDRF website features a special page in the “Life with Type 1 Diabetes” section with materials and articles for adults. In this section of the website, you can download the Adult Type 1 Toolkit, a comprehensive free guidebook that contains important information and insight for adults, including a toolkit specific to newly diagnosed adults. For additional support and information, please visit the Adult Resource Center on Juvenation. In this section of the site you can find helpful tips on dealing with day to day issues such as workplace concerns, blood glucose management issues, considerations about planning a family, as well as ways to connect with JDRF and others living with T1D.
JDRF also has support groups and other activities geared to adults living with T1D. More information about participating in your area is available from your local JDRF chapter. I can have your chapter contact you if you wish, or you can find contact information for your chapter by visiting the JDRF website.
Ultimately only you can determine whether or not you are seeing the right doctor, but we will attempt to provide general guidelines to help you make that determination. On your next visit to your doctor, you may want to ask some or all of the following questions, in order to determine his/her level of expertise with type 1 diabetes (T1D) management. If you don't feel comfortable with your doctor and have difficulty engaging in dialog with him/her, it is probably best for you to seek better care.
Questions for your doctor:
You can also ask other people with type 1 diabetes in your area who they recommend. In addition, the American Association of Clinical Endocrinologists (AACE) web site is an excellent resource for type 1 diabetes care information, and allows you to search for an endocrinologist in your area.
There are pharmaceutical assistance programs offered directly by some drug companies for people with type 1 diabetes who have little or no insurance to help offset the cost of supplies or prescription medications.
The Pharmaceutical Research and Manufacturers Association (800-762-4636) has information on such programs.
The Partnership for Prescription Assistance (PPA) offers a point of access to hundreds of assistance programs that have joined together to provide savings to the uninsured. Phone: 1-888-477-2669.
The Together Rx Access Card offers hardworking Americans and their families 25 to 40 percent off brand-name prescription medications at pharmacies nationwide. Phone: 1-800-444-4106.
Needy Meds is a non-profit organization that provides information about patient assistance programs to help people who cannot afford medicine or healthcare costs. Needy Meds provides a database of clinics that offer healthcare at no cost, for a small fee, or on a sliding scale.
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) has a publication called "Financial Help for Diabetes Care."
The federal government's new site, Healthcare.gov, has information about health insurance options as well as an easy-to-use guide to help you find out which private insurance plans, public programs and community services are available to you. Also, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) has a publication entitled "Financial Help for Diabetes Care."
For your child, every state in the nation has a health insurance program for infants, children, and teens who are not otherwise insured. To find out about programs in your state, search Insure Kids Now!, offered by the U.S. Department of Health & Human Services (or call 877-KIDS-NOW). Another option to investigate is your state Children's Health Insurance Program (CHIP).
People with type 1 diabetes (T1D) may encounter difficulties obtaining life insurance. It may be necessary to do some individual research to find a company that will provide you with a policy. While JDRF does not keep lists of companies that offer life insurance to people with T1D, we can offer some direction to help you start your research into finding a policy.
An online search engine is a good place to begin your research. If you do a web search using terms such as "diabetic life insurance," you should find companies that will provide coverage. JDRF cannot vouch for any of the companies that you may find in this manner, however, so we strongly recommend you investigate them thoroughly.
The American Diabetes Association has helpful tips about obtaining life insurance for people with diabetes, which you can view here.
You can get in touch with your state's insurance regulatory office to see if they have any recommendations. A listing of state insurance regulatory offices is available here.
JDRF Kids Online has articles on diabetes camps. In addition, state-by-state listings of summer camps for children with type 1 diabetes can be found at Children with Diabetes and the Diabetes Education and Camping Association. You can also search for type 1 diabetes camps on the American Camp Association's website.
JDRF’s Clinical Trials Connection provides people affected by type 1 diabetes (T1D) and its complications with up-to-date information on clinical trial participation opportunities.
Clinical Trials Connection is an online service that allows you to “opt-in” to get information about trials, and access to them. It contains information about all currently active T1D trials in the U.S. Based on the criteria you choose, the connection provides you with information about selected trials and how to contact the researchers conducting them. You can also choose to receive regular updates so that you’ll know when new trials that meet your criteria become available. If you find a trial that interests you, you can discuss it with your doctor and also contact the trial’s primary investigator with any questions or concerns.
This is the question JDRF is actually best equipped to answer, as the only major type 1 diabetes (T1D) organization focused exclusively on research. Driven by passionate, grassroots volunteers connected to children, adolescents, and adults with this disease, JDRF is now the largest charitable supporter of T1D research. The goal of JDRF research is to improve the lives of every person affected by T1D by accelerating progress on the most promising opportunities for curing, better treating, and preventing T1D. JDRF collaborates with a wide spectrum of partners who share this goal.
Since our founding in 1970, JDRF has awarded more than $1.6 billion to T1D research (including $116 million in FY2011). JDRF is proud to say that more than 80 percent of our expenditures go directly to research and research-related education.
The best ways are by making a donation or volunteering with JDRF. The goal of JDRF research is to improve the lives of every person affected by type 1 diabetes (T1D) by accelerating progress on the most promising opportunities for curing, better treating, and preventing T1D, so you know that the money you donate or help raise will be used appropriately. More than 80 percent of JDRF's expenditures go directly to research and research-related education.
JDRF has many wonderful opportunities for volunteers. Events such as Walks, Galas, Rides, and various other fundraisers are great ways to meet other families dealing with T1D and forge bonds that will last a lifetime. In addition to fundraising, JDRF volunteers also invest time in our grassroots advocacy initiatives, such as Children's Congress and the Promise to Remember Me Campaign. While JDRF is the world's leading charitable funder of T1D research, we also advocate for federal support of T1D research, in order to ensure that sufficient funds will be available to support the critical human clinical trials needed to ultimately cure T1D.
Can't find what your looking for? Contact our community manager Gina@Juvenation.org