Juvenation Support

Once you login, at the top of the page you will see:
[your user name] | Edit | Sign Out click on EDIT

You will then see three different tab options:

Profile Options – In your profile options you can add or change your avatar, create your bio, edit your common profile options such as your name, location, when you were diagnosed add your personal web address or blog and more… It also has a section for Shared Feeds where you can add in RSS Feed URLS which will show up on the left side of your public profile. Once you have finished press save at the bottom of the page and your settings will be saved. You can change any of these anytime you would like.

Site Options - This is where you can create your signature at the end of your thread posts as well as Email configuration (making your email private, turning on email notifications etc..). Conversations configuration (allowing conversations from none, friends only or all users) Format your date and time, time zone, activity message configuration (allowing activities to be logged and displayed on the site) and API keys. Press save at the end of the page and all changes will be saved.

Sign-in Information – Here you will find your Sign-in name, Password change and the last time you signed into the site. Press save and all changes will be saved.

You can add a person as a friend by clicking on their screen name and right under the avatar on the left of the page, click on Add to Friends. You will then see a send a friend request form with a default message that you can use, or you can change what it says to anything you wish to say and press send request. Please note that the requested friend can accept or deny your request.

You can add a comment on friend’s profile by clicking on their screen name and right under the avatar on the left of the page, click on Add comment. A pop-up with a leave a comment form will then be available for you to fill out. Add a subject and send your message by clicking publish on the bottom left.

You send a private conversation by clicking on the friend’s screen name and right under the avatar on the left of the page, click on Add start a conversation. A pop-up with a start a conversation form will then be available for you to fill out. Add a subject and send your message by clicking publish on the bottom left. You can see your conversations by going to the top right of your profile where it says Conversations and the number of messages will come up if you have any.

If you want to see who is online you can click on the MEMBERS link on the top navigation. You can also see who is online in the site shortcuts on the FORUM page on the right hand side of the page.

You can invite people to use Juvenation by clicking on the MEMBERS link on the top navigation. Scroll down till you see Invite Users. Enter the email addresses of people you would like to invite to join this community along with a brief message. Multiple email addresses can be entered, delimited by semi-colons.

Only administrators have access to adding videos at this time. If you would like a video added please contact a site admin.

If you would like to create a blog click on the BLOG link on the top navigation. On the right side of the page it will say shortcuts and there will be a link that says Create New Blog, complete the form by adding your blog name, web address, other people that you choose to add blogs to your account and which section of the website you would like to see it. Community Blogs is the default.

Once you have setup your blog you can go to your profile page by clicking on your name on the top right of the page. When you get to your profile on the left side of the page under your avatar you will see your blog name which is a link that you can click on. It will bring you to your blog homepage where you can add a new post on the right hand side by clicking on Write a New Post.

On your blog homepage you can click on the control panel link on the right side of the page under your blog name.

Here you will see 3 different tabs;

Write – Under the write tab you can Write a new post or page Configure your comments & feedback, publication settings, embed video, see your advanced options and preview

Manage – The manage tab allows you to publish comments made to your blog posts

Posts - From this page you can manage posts that you've already published to your blog or review posts that are not yet published. You can also see how many views your post has had.

Pages - The list below contains both published and unpublished pages for your blog.

Files - File storage enables you to upload images and other files that can be published with your blog.

Tags - keywords (tags) that you have used to categorize your posts.

Feedback - Contact requests that people have made to your blog.

Lists - You can add content to your blog's sidebars (the areas around your blog content) using lists. For example, if you wish to display a list of other blogs your read, also known as a 'blogroll', you would simply create a new list with those blogs and URLs.

Snippets - Snippets allow you to quickly create links in your blog posts and pages using simple replace text. For example, you may often refer to a particular resource on the Internet in your blog posts. Rather than typing that URL each time you want to use it you can create a snippet instead. To use a snippet simply type the name of your snippet between brackets. For example, a snippet named 'products' would be: [products].

Spam - Comments and trackbacks that the Spam Blocker has caught. These are not displayed on your blog.

Configure – In the common setup options for your blog, there are three options

Blog setup - you can create the title and description, email configuration, about you, and search engine optimization.

Post options - These options control how posts are published on your blog.

Feedback - These settings control how readers can leave feedback for new posts you write.

Display - These settings control how your posts are published. These settings will be applied to new posts and can be changed when writing the post.

Advanced Configuration - These settings control advanced configuration and settings options for expert bloggers. Here you will have advanced options for feedback, comment spam, RSS to syndicate your content, Itunes, feedburner and other misc options.

Juvenation is moderated by JDRF staff and volunteers. Inappropriate, suspicious, and/or offensive content and behavior is scrutinized wherever possible, however, not every post or thread may be noticed by a moderator. We encourage our users to use the “report abuse” feature to help keep Juvenation safe.

In addition, we recommend that concerned parents or teens review the FBI publication: A Parent’s Guide to Internet Safety for additional information and FAQs.

To create a new forum post click on the forum link. There will be a link to the left of Shortcuts that says Write a new post click the link. It will then create a drop down menu, choose the forum you would like to add your new post to and a new page will come up that says post a message where you can add the subject and body. You will also be able to add a file attachment by clicking on options, video, a poll and preview your post before it goes live. Then click on post to the bottom left of the page.

If you would like to quick reply to a forum at the bottom of the last post in a forum there will be a button that says quick reply, press that and a Reply to box will pop up where you will be able to respond. Press the post button and your response will come up in the thread.

On every post replied there is a more button next to reply at the top part of any post. Click on the button, a drop down will appear and click on the link that says Send to friend.

There is a moderate button at the bottom of every post in the forums. You will be able to delete or edit your post by clicking that option.

On every post replied there is a more button next to reply at the top part of any post. Click on the button, a drop down will appear and click on the link that says Add to Favorites. You can also add this forum to favorites as well.

On every post replied there is a more button next to reply at the top part of any post. Click on the button, a drop down will appear and click on the link that says Report Abuse.

When you click on the Forum Link. There is a shortcut link with 7 links. Click on the link that says Posts you have not read.

When you click on the Forum Link. There is a shortcut link with 7 links. Click on the link that says Forum Subscriptions. Here you can choose to subscribe or unsubscribe to any threads.

When you click on the Forum Link There will be 5 links right under the Forums descriptions called;

Filter: All Recent | Unanswered | Unread | Your Discussions

You can click on any of these links to find threads and forum posts you are interested in.

You can join a group by clicking on the Group tab at the top of any page.

Choose the group you are interested in by clicking the Group tab. Once you click on a group there will be a short cut list on the right hand side of the page, click on discussions and a new page will pop up where you can then click on Write a new post.

Choose the group you are interested in by clicking the Group tab. Once you click on a group there will be a short cut list on the right hand side of the page, click on sorting and filtering and a new page will pop up where you can then edit your sorting and filtering options.

Choose the group you are interested in by clicking the Group tab Once you click on a group there will be a short cut list on the right hand side of the page, click on Blog and a new page will pop up where you can then create a new blog.

Only Juvenation moderators and administrators can create pages at this time.

Choose the group you are interested in by clicking the Group tab Once you click on a group there will be a short cut list on the right hand side of the page, click on members and a new page will pop up where you can then view all members assigned to the group.

Choose the group you are interested in by clicking the Group tab Once you click on a group there will be a short cut list on the right hand side of the page, click on RSS and a new page will pop up where you can then create a new RSS feed.

Click on the group tab Scroll down till you see the short cut list on the right hand side of the page, click on request new group and a new page will pop up where you can then request a new group.

The JDRF website has fact sheets on each of these topics, here: http://www.jdrf.org/

The symptoms may occur suddenly, and include one or more of the following:

• Extreme thirst
• Frequent urination
• Drowsiness, lethargy
• Sugar in urine
• Sudden vision changes
• Increased appetite
• Sudden weight loss
• Fruity, sweet, or wine-like odor on breath
• Heavy, labored breathing
• Stupor, unconsciousness

If you think you have diabetes, call a doctor immediately, and drink fluids WITHOUT SUGAR to prevent dehydration.

In a person who has type 1 diabetes, the insulin-producing beta cells in the pancreas are destroyed by immune cells. However, right after the time of diagnosis, some patients go through a "honeymoon phase" in which their existing beta cells still function. A number of research projects are currently taking place which hope to preserve the function of these existing beta cells after the honeymoon phase in people with type 1 diabetes. For more information, visit the JDRF website.

Ninety percent of people who develop type 1 diabetes actually have no relative with the disease. Thanks to studies of families, researchers now can identify at birth when a baby carries some of the genes that indicate risk factors for type 1 diabetes. Certain genes called HLA markers are associated with diabetes risk. If a child is born with such markers, his or her risk of developing type 1 diabetes is about the same as if he or she had a sibling with type 1 diabetes, even though no other family member may have the disease. There are other genes that also create risk for type 1 diabetes that have not yet been identified. For more information, visit the JDRF website.

Although the causes of type 1 diabetes are not entirely known, scientists believe the body's own immune system attacks and destroys insulin-producing cells in the pancreas. It is not caused by obesity or by eating excessive sugar, which are two common mythsabout type 1. Both genetics and environmental "triggers" are being studied as potential causes of type 1 diabetes. According to William Winter, M.D., a professor at the University of Florida College of Medicine in Gainesville, "At most, only 15 percent of people with type 1 diabetes have an affected first-degree relative - a sibling, parent, or offspring. Research suggests that genes account for less than half the risk of developing type 1 diabetes. These findings suggest that there are other factors besides genes that influence the development of diabetes." For more information, visit the JDRF website.

You should check with your doctor to determine the range of blood sugar levels best for you. In general, optimal blood sugar goals are: Before Meals: 70-110 mg/dl At Bedtime: 100-140 mg/dl If your before-meals blood sugar is consistently lower than 70 mg/dl or higher than 140 mg/dl, or your bedtime blood sugar is consistently lower than 100 mg/dl or higher than 160 mg/dl, you probably need a change in your treatment plan and should consult your doctor. Blood sugar goals may be modified for children and others who are at greater risk for hypoglycemia.

Yes. JDRF has many compassionate, understanding, and dedicated volunteers who have been through many of the things you are experiencing and are more than happy to help you. Our Online Diabetes Support Team is made up of such volunteers. In addition, there may be support groups in your local community that meet on a regular basis. For information on specific topics and latest products and technology, see our Resources page.

School presents a host of challenging issues for children and teens with type 1 diabetes, and it's important to know your rights. Information on laws protecting you/your child, as well as many articles with practical tips and advice from parents is available on our Type 1 Diabetes in School page. This guide includes a section on Type 1 Diabetes in College, and a full college guide is planned for the near future.

Ultimately only you can determine whether or not you are seeing the right doctor, but we will attempt to provide general guidelines to help you make that determination. On your next visit to your doctor, you may want to ask some or all of the following questions, in order to determine his/her level of expertise with type 1 diabetes management. If you don't feel comfortable with your doctor and have difficulty engaging in dialog with him/her, it is probably best for you to seek better care.

Questions for your doctor:

• How many patients with type 1 diabetes do you care for in your practice?
• Are you familiar with the Diabetes Control and Complications Trial?
• Do you work with a type 1 diabetes nurse educator?
• Do you work with a dietitian knowledgeable about type 1 diabetes?
• Do you work with an eye doctor knowledgeable about diagnosing and treating eye problems related to type 1 diabetes?
• Do you have any experience with insulin pumps?
• Is someone available 24 hours a day to help me manage problems with my type 1 diabetes? How do I contact that person?

You can also ask other people with type 1 diabetes in your area who they recommend. In addition, the American Association of Clinical Endocrinologists (AACE) web site is an excellent resource for type 1 diabetes care information, and allows you to search for an endocrinologist in your area. In May 2002, the AACE created the Intensive Diabetes Self-Management System, which includes an AACE Patient/Physician Contract - emphasizing that type 1 diabetes care is the responsibility of both the doctor and the patient.

There are pharmaceutical assistance programs offered directly by some drug companies for people with type 1 diabetes who have little or no insurance to help offset the cost of supplies or prescription medications.

The Pharmaceutical Research and Manufacturers Association (800-762-4636) has information on such programs.

The Partnership for Prescription Assistance (PPA) offers a point of access to hundreds of assistance programs that have joined together to provide savings to the uninsured. Phone: 1-888-477-2669.

The Together Rx Access Card offers hardworking Americans and their families 25 to 40 percent off brand-name prescription medications at pharmacies nationwide. Phone: 1-800-444-4106.

Additionally, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) has a publication called "Financial Help for Diabetes Care." Order print copies from the National Diabetes Information Clearinghouse: 800-860-8747.

Every state in the nation has a health insurance program for infants, children, and teens who are not otherwise insured.

To find out about programs in your state, search Insure Kids Now!, offered by the US Department of Health & Human Services (or call 877-KIDS-NOW).

Another option to investigate is your state Children's Health Insurance Program (CHIP).

Also, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) has a publication entitled "Financial Help for Diabetes Care." Order print copies from the National Diabetes Information Clearinghouse: 800-860-8747.

People with type 1 diabetes may encounter difficulties obtaining life insurance. It may be necessary to do some individual research to find a company that will provide you with a policy. While JDRF does not keep lists of companies that offer life insurance to people with type 1 diabetes, we can offer some direction to help you start your research into finding a policy.

An online search engine is a good place to begin your research. If you do a web search using terms such as "diabetic life insurance," you should find companies that will provide coverage. JDRF cannot vouch for any of the companies that you may find in this manner, however, so we strongly recommend you investigate them thoroughly.

The American Diabetes Association has helpful tips about obtaining life insurance for people with type 1 diabetes, which you can view here.

You can get in touch with your state's insurance regulatory office to see if they have any recommendations. A listing of state insurance regulatory offices is available here.

JDRF Kids Online has articles on diabetes camps. In addition, state-by-state listings of summer camps for children with type 1 diabetes can be found at Children with Diabetes and the Diabetes Education and Camping Association. You can also search for type 1 diabetes camps on the American Camp Association's website.

This is the question JDRF is actually best equipped to answer, as the only major type 1 diabetes organization focused exclusively on research. JDRF is the number one nonprofit, nongovernmental funder of type 1 diabetes research worldwide and our mission is constant: to find a cure for type 1 diabetes and its complications through the support of research. JDRF is proud to say that more than 85% of our expenditures go directly to research and education about research. To find out the latest in type 1 diabetes research news, you can do several things: subscribe to Countdown magazine; subscribe to JDRF's Research Frontline e-newsletter; review the Research pages on this site; and check our homepage, which is updated with new stories frequently.

The best ways are by making a donation or volunteering with your local chapter of JDRF. JDRF's sole mission is to find a cure for type 1 diabetes and its complications through the support of research, so you know that the money you donate or help raise will be used appropriately.

More than 85% of JDRF's expenditures goes directly to research and education about research. JDRF has many wonderful opportunities for volunteers. Events such as Walks, Galas, golf tournaments, and various other fundraisers are great ways to meet other families dealing with type 1 diabetes and forge bonds that will last a lifetime. In addition to fundraising, JDRF volunteers also invest time in our grassroots advocacy initiatives, such as Children's Congress and the Promise to Remember Me Campaign.

While JDRF is the world's leading nonprofit, nongovernmental funder of type 1 diabetes research, we also advocate for federal support of type 1 diabetes research, in order to ensure that sufficient funds will be available to support the critical final phase of research to find a cure: human clinical trials.